Author: autisminourhouse

as always, I am sooo thankful for what we’ve ruled out so far! That being said, my anxiety level is through the roof. We’ve not told the boy tat little brother get’s to stay with grany while we are in the big d…that won’t be pretty, for sure! Second, if you’ve ever had to hand your child over to a doctor for sugery (no matter how minor, you understand how absolutely nerve wraking it is! I feel like crying just thinking about it. I am ready to know what’s going on so the boy can get back to life as usual (whatever that is)! I want to KNOW what is causing this feverm we can deal with anything but the not knowing. There are so many scary things that it could still be. My hope for my son is that one day things will be easy for him health wise! I don’t want him to remember kindergarten as the year he missed 45 days of school! I want him to remember it as the year he met his BFFE (best friend for EVER) and the year he learned he COULD eat in the cafeteria and listen to his teacher and make it through Social Skills even though he doesn’t like it. I want him to remember it as the year he got his first grown up tooth and learned that just because he can read and write already, kindergarten is fun and important. He’s grown so much already. I am proud beyond words!
I appreciate your kind thoughts and prayers. We’ll post more tomorrow!
Hugs,
Kristi and co.

So, we are gearing up for a trip to Dallas. We’ve decided that a fresh set of eyes on the boys’ medical issue is in order. We’re set to have new tubes placed and a sinus flush and culture. Hopefully, this will give us the answers we are seeking. If you are interested, I’ll try to update here on Tuesday as well as joe’s care page which can be found at carepages.com the page name is josephgold. Thanks for all the love and support!

Here it is almost Thanksgiving and I do have SO much to be thankful for…I’ll get to that later. Right now, I need to rant about a certain doctor we’ve been seeing trying to figure out why the oldest has had fever since September. Our pediatrician has been fantastic. Her staff has been amazing and accommodating! They’ve never made me feel like I’m too worried, not worried enough, they’ve fit me in when I’ve been in helicopter mom mode. So, for them, I am thankful. That being said. We’ve been seeing an Infectious Diseases doc for over a month (almost two) now. The first appointment was great. The second, still good. Then, I did the unthinkable. I questioned someone who thinks they know EVERYTHING. On a Friday evening, this doctor had her staff call and give us the results of a CT scan saying that the boy had mastoiditis. Well, because I didn’t get any explanations of what this is, what it means, where do I turn? The internet. Sure enough, the internet says mastoiditis is an emergency that needs to be treated with i.v. medicines. So, I work myself up BIG TIME. Saturday a.m. I called the on call doctor to ask why we weren’t in the emergency room…I explained that I hadn’t talked to the doctor only her staff and I looked up the diagnosis on the internet. This very nice on call doctor explained that sometimes one with mastoiditis doesn’t need to be in the E.R. Being who I am, I called our ENT and scheduled an appointment. Sure enough, he says, that the boy did NOT have clinical mastoiditis and that doctors who are not ENTs give this diagnosis and don’t realise that it is wrong. At any rate, after that phone call to the on call doctor, things deteriorated with the i.d. doc. Yesterday, we had a follow up and she totally BLEW us off! I should say also, that in between these visits with the reg. i.d. doc, we saw her partner, who was kind and patients. She ran blood work and a chest x-ray. I had to call the office 15 times before I got someone to tell me the results of the blood work. So, I went in yesterday expecting exactly what happened. The doctor looked at the boy briefly and said, “I don’t need to see him anymore.” Brain and I were too mad, shocked and FRUSTRATED to ask WHAT??? So, being who I am, knowing we have an appt with the gastroenterologist (down the hall) in December, I waited for an hour to speak with the nurse, who so kindly bumped our appt up by a week. The doctor is staying in the office late JUST to fit us in! Our hope is that we can get the boys’ g.i. workup scheduled for the same day as his new ear tubes.
It breaks down to this: I am so frustrated with doctors who let bruised egos come between them finding a resolution for a CHILD! I am so thankful for doctors and nurses who will help soothe a worried mama’s mind!

I am thankful to you all, my family and friends!

Happy turkey day y’all!

favorite birthday pic from last year five and three (top) and this year six and four (bottom)

So, we (by we I mean me) haven’t posted in quite a while. Joe began kindergarden in August, and after a ROUGH start, he seems to be doing exceptionally well. He’s mastered the kindergarden testing level, and his teacher is going to test him next semester with the first grade materials…soon he’ll be ruling the school 😉

Shortly after school began, Joe got an ear infection and has been battling fever ever since. We are currently waiting on test results from the second set of blood work. If there is nothing abnormal in those tests, the doctor said it would be up to us to determine how aggressive we want to be in finding the cause of the fever.

Chet is in the “big kid” class this year and really enjoying his new teacher Miss Debbie. I’ve been the “helper” in the two year old class and often ask myself, “Why did I give up two days a week to myself?” But, the kids are so sweet (most of the time…okay, some of the time).

Hoping all of our friends and family are doing well. We’ve been really consumed with doctor’s appts and have been terrible about communicating with everyone.

Hugs and Love,
The Gold Family