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"…but you are not alone in this/You are not alone in this/As brothers we will stand And we’ll hold your hand…" Timshel-Mumford & Sons

Joe and Chet are the most awesome of brothers. They’ve been playing so well together. I am blessed to have them and they are blessed to have each other!

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Home again

We are home from a fantastic visit with my grandparents! Enjoyed every minute with them and Auntie Mary Jo; even got to see Chandon and Taylor and her boyfriend. Got the last culture result from the Dallas ENT, and no fungus has grown. That’s good, but we still don’t know then what is causing the fever. Wednesday we have a CT scan of joe’s pelvis and abdomen to see if there is anything going on there. Saw joe’s craniofacial surgeon and things look good there. We are on the fast track for braces and palate expansion. The speech pathologist said it’s time to bulk the boy up b/c it’s a three MONTH liquid only diet after bone graft! WHAT??! She said the surgery is easy though! No one is quite sure what we should do about this fever though.

I hope you all are able to count your blessings this Holiday Season! Merry Christmas!

Hugs from Kristi and co.

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anxiety is kicking in

as always, I am sooo thankful for what we’ve ruled out so far! That being said, my anxiety level is through the roof. We’ve not told the boy tat little brother get’s to stay with grany while we are in the big d…that won’t be pretty, for sure! Second, if you’ve ever had to hand your child over to a doctor for sugery (no matter how minor, you understand how absolutely nerve wraking it is! I feel like crying just thinking about it. I am ready to know what’s going on so the boy can get back to life as usual (whatever that is)! I want to KNOW what is causing this feverm we can deal with anything but the not knowing. There are so many scary things that it could still be. My hope for my son is that one day things will be easy for him health wise! I don’t want him to remember kindergarten as the year he missed 45 days of school! I want him to remember it as the year he met his BFFE (best friend for EVER) and the year he learned he COULD eat in the cafeteria and listen to his teacher and make it through Social Skills even though he doesn’t like it. I want him to remember it as the year he got his first grown up tooth and learned that just because he can read and write already, kindergarten is fun and important. He’s grown so much already. I am proud beyond words!
I appreciate your kind thoughts and prayers. We’ll post more tomorrow!
Hugs,
Kristi and co.

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Gearing up for the big D

So, we are gearing up for a trip to Dallas. We’ve decided that a fresh set of eyes on the boys’ medical issue is in order. We’re set to have new tubes placed and a sinus flush and culture. Hopefully, this will give us the answers we are seeking. If you are interested, I’ll try to update here on Tuesday as well as joe’s care page which can be found at carepages.com the page name is josephgold. Thanks for all the love and support!