Author: autisminourhouse

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I can’t believe it is February already. When we scheduled Joe’s surgery, it seemed as if we had LOADS of time to prepare; now, it’s already February 3rd and I’m not ready. I still don’t know what we are going to do with Chet, how long Joe will be in the hospital (if at all), what kind of nasal packing they are going to use (won’t know that until after surgery), when our follow up appts will be (won’t know that until after surgery), don’t know when Joe will be able to get back in to his routine, don’t know how it will all play out. I guess I am a bit of a controll freak and don’t like how much of this is up in the air and will continue to be. I have to give up what I can and give the surgery stuff over to the surgeon. I guess Dr. Stockstill Gold here will just have to relax and let it be for now. I’m going to try to have lots of worksheets for Joe to do and some new toys for both boys. I know Granny Auntie Mary Jo will take care of some of the toy issues (she always has new toys for the boys;-) Aunt Jennifer (Brian’s sister) got Joe a toy skunk. He requested that as his treat after surgery. I looked EVERYWHERE for a skunk…could only find Pepe le Pu or a remote controll skunk…she found one at the TLU bookstore of all places! So, thanks for that Jenny! Let me know if y’all have any good ideas of how to keep an ACTIVE 4 year old somewhat still for two weeks! Hope you are all happy and healthy. Love to you,
K and Co.

We’ll be in Dallas on February 17th for Joe-Joe’s pre-op appointment. Thursday, February 19th Joe-Joe will have his lip and nose revision as well as the coblation of his turbinates. I know that he will be fine and that Dr. Genecov will do an excellent job! I am just so frightened of my little boy undergoing any pain. If I could, I would take this from him and endure it myself. But, our Joe-Joe is such a strong, amazing boy, that I know he will breeze through this. I’ll keep you posted here and through our care page.
Love to you,
K and Co.

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It totally makes sense that kiddos with clefts would have deviated septums…our ent said that when you remove tonsils and leave adenoids as they do in most cases of kiddos with clefts, the adenoids grow bigger. He said that Joe definitely has a deviated septum that it just comes withe the cleft, but that isn’t what is causing the breathing issues b/c when you have a deviation, the side that is larger compensates for the side that is smaller. Joe’s sinus cavities are swollen (not surprised it’s alergy season here.) He gave a nasal steroid to use for 3 weeks; I am to call back at that time and tell them if he has improved. If not, it’s off to a sleep study to see if he’s loosing too much oxygen. If he’s loosing to much oxygen, then we’ll have to consider removing the adenoids. He said as far as the septum goes, that’s a 16-17 year old procedure if/when Joe decides to have rhinoplasty.